Tuesday, October 15, 2013

Backstory



Our identities are inextricably tied to the stories our families tell about who we are, where we came from, when we arrived in this land, and details about personalities, work ethic, and cultural heritage. From an early age, we hear stories about Gram Bickey and Uncle Joe and Aunt Alice, about the ice cream store that our grandparents owned, about working poor growing up, and about the rise to middle class economic success. We are told we are just like Aunt Laura or Grandma Helen or Dad, and we look like Cousin Chris or Cousin Barbara or Cousin Sara. We see our noses when we look at Mom and our chins when we look at Dad and our earlobes when we look at large family Christmas portraits. 

Stop.

Go back.

Think about those stories. Now imagine that you aren’t anything like your family in personality or physical characteristics. There are no matches. No physical resemblance. No personality similarities. No “I get that from you” moments. Imagine that when you were young, sometimes those differences created tension and unease.

“Why can’t you just listen?” (Or obediently do what we are telling you to do.)

“Why do you always have to learn the hard way?”

“Why can’t you just write happy things?”

Imagine being made to feel small for your rambunctiousness, for your stubbornness, for your headstrongness, for your independent determination to figure things out for yourself. Like something is wrong with you for being who you are. 

Never imagining that one single interaction could change all of those feelings and reverse all of the hurt. Always wondering what it would feel like to know that you belonged. To lift the sense of being an outlier in your own family.

I feel like I need to make a qualifying statement about how much I love my family before I progress, but as Anne Lamott so succinctly stated, “You own everything that happened to you. Tell your stories. If people wanted you to write warmly about them, they should have behaved better.”

This quote lives on my office door and I frequently make my students read it as I remind them of this vital fact. To write truthfully and creatively about yourself is to tread on potentially dangerous territory because someone’s feelings might get hurt. But we own our stories. And although I do love my family, I also have deep seated feelings and a long memory. And this is MY truth.

Fast forward.

This past Sunday, at 10 a.m. in North Park outside of Pittsburgh, PA, on a gray and overcast rainy day, I met my birth mother face to face for the first time.

Embedded in that first fierce and strong hug was a lifetime of longing.

“Since I last held you, I’ve wanted this,” she said into my hair, her tears wetting my neck. “I love you.”

Tears sprang to my eyes, surprising me with the force of emotion behind them. “I love you, too.”

She pulled back and caressed my face, laughing and crying. “You’re so pretty. So pretty.”

I looked into her eyes and saw mine. “You have blue eyes,” I said, smiling and allowing myself to feel the weight of the moment as my tears flowed. “I have your eyes.”

She smiled, looking me full in the eyes with absolute acceptance. We hugged for a long time and it felt good. In that hug and in the next seven hours, I started to understand more about who I am, where I come from, why I am the way that I am, why I look the way I do.

We have the same eyes. The same smile. The same nose. The same non-lobe earlobes.

We have the same stubborn determination. The same penchant to think and weigh decisions carefully before committing to a course of action. The same preference for not wearing jewelry, for booths over tables, for gardening, for animals, for taking chances, for loving deeply.

For the first part of the visit, we sat knee to knee, holding hands, sharing stories and laughter and insights. Nerves melted away into a warm comfort of understanding.  I started to feel like I could really breathe. Or finally exhale.

She lifted her hand to caress my cheek. “You have my skin!”

“That explains why I look so much younger than my age. And seeing how beautiful you look gives me hope.”

She showed me family photos of my half-sister and half-brother, aunt, uncle, grandparents. I took photos of her photos and studied the faces. I saw my chin, my nose, my facial shape. I heard about these people and their stories and characteristics and felt something I’ve never experienced before that I think many people take for granted – acceptance that my personality, physical looks, and emotional characteristics stem from a long line of people with similar personality traits, physical appearance, and psychological characteristics. In my specific case, I come from a determined, opinionated, and headstrong German people.

That was a surprise. The German heritage.

My family is Irish and my parents were told by the adoption agency that I was Scottish and Irish and that my birth father was French Canadian.

That wasn’t quite true.

Turns out my birth father was possibly of French descent, but was an American marine. He also denied my paternity, which is why his name doesn’t appear on my original birth certificate. And my birth mother’s family is mostly German with a bit of English and Scottish.

No wonder I like bratwurst and beer. :)

Interlude.

I’m still processing the German, not Irish distinction. Being an American, it’s not as if my family’s former nationality plays a large role in my identity, but in many ways it does. My family is proudly Irish and they bring it up frequently enough to notice. Perhaps this was a relief of sorts that the girl they had adopted shared this nationality. But now that isn’t true and my parents brushed it off and are taking it well. 

Families give us our first sense of identity through the stories they tell us as we grow up. Those stories are repeated at family dinners and picnics and vacations to the point of becoming legendary tales that are retold to re-establish that communal sense of belonging. 

What happens when the story changes?

At the end of our daylong meeting, we discussed the Facebook discovery. I found her on Facebook. I had her name and it took me three hours of Internet searching. She recounted how much she has wanted to meet me, but that it had to be my decision. She never wanted to give me up, but did so because it was the right decision for me. She always hoped I would contact her. She has always loved me.

I can’t begin to express how much healing has begun now that I know. The mystery is solved. My story is changing and I will be better for it.

A new story begins.

Wednesday, October 9, 2013

The routineness of genetic testing

"Sail away, sail away, sail away," Enya croons softly from the overhead speakers. Giada De Laurentiis makes some kind of chocolate cookie dough with chocolate chunks on the little flatscreen TV. A magazine page crinkles and swooshes into place as the woman behind me turns the page. It all seems so routine.

"Genetic testing," my doctor announced definitively at my last gynecology appointment. I had just learned about my family medical history from my birth mother, and had related it to my doctor: Aunt died of ovarian cancer, Grandmother died of breast cancer, Grandfather died of colon cancer. Now that we know I have this dangerous trifecta in my immediate family, genetic testing is the Sherlock Holmes of cancer testing.

For women with my history, genetic testing can open a door to potential preventative solutions, including (in my case) surgical removal of my one remaining ovary because evidently, "Ovarian cancer shows up in stage three," my doctor admonished, looking at me with that "take this seriously" look that I think doctors must perfect in residence. Fortunately, I do take this seriously. Or I thought I did. I just haven't felt any nerves or qualms about it yet because I am fully in favor of knowledge being powerful and an ounce of prevention and all that.

Now, surrounded by such common sights and sounds as I wait, distracting myself with Facebook and emails, I feel a swirl begin in my stomach. True, it may be that my jeans are now too tight because I gained back the ten pounds I lost over the summer (What? It's been a stressful semester. Again. Just in the last four weeks I've been insulted, threatened, and scolded. Seriously.). But no. The jeans aren't that tight.

Have I just been too distracted by my work, my wonderful relationship, my enjoyment of my garden and food and fishing, to really fully comprehend what this testing means?

If I test truly positive or "uncertain" for the breast and ovarian cancer gene, that means major surgery. Necessary, but major. And the last time I had surgery, it took me three days to recover from the anesthesia it made me so sick.

If I test truly positive, this means multiple mammograms and MRIs twice a year just to watch more closely until the inevitable shows up. People with family history of cancer have a 50/50 chance, according to my doctor and the research she presented to me.

For 43 years, I was blissfully unaware. Willing to go with the flow and just deal with whatever arose. And now, that has changed. Now, I will know. I want to know. And if the results aren't clear, then the decision becomes fuzzy and uncertain. Act? Or wait? Waiting could be a death sentence. Or not.

These are weighty thoughts and the swirl in my stomach hasn't stopped. No matter what the test results are, my life will change. Maybe that's why every skin cell now feels alert and prickly hot. My throat starts to throb with my heartbeat as it speeds up. My saliva tastes tinny. This feels momentous. Like I should take it more seriously than maybe I have.

"Amanda? The doctor can see you now."